As mentioned in the post about exciting things ahead, I was preparing to engage with a medical study soon which was incredibly interesting and could have offered some new treatment for my stubborn arm which is still very much not progressing despite continuing physio and OT

However during a screening phone call with the lead medic I was excluded from this study due to having a pacemaker, I have no control over this situation (frustrating when my heart is now possibly the best it’s been in years)and all I can do now is try and engage my cardiac team with the study team to try and help get me a space;In a similar way as I’ve had to get the cardiac team engaged with the leg FES Team (FES post with all this detail coming at a later point)

I am just fed up of everything being a battle. All these promising and modern treatment options exist but just are not easily accessible and apparently not at all for me, as yet, im not accepting ‘no’ without a battle. 🤬🫠

In positives though I had my second speech therapy session this week and lots of people have commented on how clearer and louder my speech is which is lovely. This week is the start of the two week FES leg 🦿trial so let’s hope that’s a bit more promising.